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EPILEPSY AWARENESS: BREAKING MYTHS, BUILDING UNDERSTANDING AND CREATING INCLUSIVE SCHOOLS

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EPILEPSY AWARENESS: BREAKING MYTHS, BUILDING UNDERSTANDING AND CREATING INCLUSIVE SCHOOLS

National Epilepsy Awareness Month | November 2026

Imagine witnessing someone suddenly fall to the ground and begin shaking uncontrollably. Would you know what to do? Would you remain calm, offer help or feel unsure about how to respond?

Moments like these remind us why awareness matters. Understanding epilepsy is not only about learning a medical condition; it is also about replacing fear with knowledge, misconceptions with facts and hesitation with compassion.

November is observed as National Epilepsy Awareness Month, an opportunity to spread awareness, challenge stigma and encourage communities to support people living with epilepsy. The 2026 theme, “Where Community Sparks Hope,” highlights the importance of connection, understanding and collective support.

Understanding Epilepsy

Epilepsy is a neurological condition characterised by a tendency to experience recurrent seizures. A seizure occurs when there is a sudden burst of abnormal electrical activity in the brain, temporarily affecting how a person moves, behaves, feels or becomes aware of their surroundings.

Seizures do not always involve falling or shaking. Some may cause a person to stare blankly, experience unusual sensations, make repetitive movements or become briefly confused. Their presentation and duration can vary from one person to another.

Epilepsy can affect people of all ages. With appropriate medical care and treatment, many people with epilepsy can manage their condition and participate in everyday activities, including education, sports and social life.

It is important to remember that a person is much more than a medical condition. Epilepsy does not define an individual's intelligence, abilities, ambitions or potential.

Breaking the Myths Surrounding Epilepsy

Misconceptions can lead to unnecessary fear, discrimination and social isolation. Correct information is an important step towards building a more understanding society.

Myth 1: Epilepsy is contagious.

Fact: Epilepsy is not contagious. It cannot be transmitted through touching, sharing food, sitting together or playing with someone.

Myth 2: Every seizure involves violent shaking.

Fact: Seizures can take many forms. Some involve muscle stiffening and jerking, while others may cause staring, altered awareness or brief episodes of unusual behaviour.

Myth 3: A person having a seizure may swallow their tongue.

Fact: A person cannot swallow their tongue. Putting a spoon, fingers or any other object into their mouth can cause serious injury.

Myth 4: People with epilepsy cannot lead active and fulfilling lives.

Fact: With appropriate treatment, support and suitable safety precautions, many people with epilepsy participate in education, employment, sports and other activities.

Myth 5: A person experiencing a seizure should be physically restrained.

Fact: Restraining someone does not stop a seizure and may cause injury. The priority is to protect the person from surrounding hazards and remain with them until they recover.

Breaking these myths helps create an environment in which people feel safer seeking support and are treated with dignity rather than judgement.

Knowing What to Do: Seizure First Aid

A seizure can be frightening to witness, especially when it happens unexpectedly. However, remaining calm and following basic first-aid principles can help prevent injuries. If someone experiences a seizure involving collapse or uncontrolled movements, remember these essential steps:

1. Stay calm and stay with the person.
Remain nearby, reassure them calmly and ask someone to assist if necessary.

2. Protect them from injury.
Move nearby sharp, hard or dangerous objects away. If the person has fallen, place something soft and flat under their head when possible.

3. Time the seizure.
Note when it begins and how long it lasts. This information can help medical professionals assess the situation.

4. Do not restrain their movements.
Allow the seizure to run its course without attempting to hold the person down.

5. Never put anything in their mouth.
Do not insert spoons, fingers, water, food or medication into their mouth during the seizure.

6. Turn them gently onto their side when possible.
If they are lying down and it is safe to do so, position them on their side, particularly after the convulsive movements stop, to help keep their airway clear. Do not force the position during active convulsions.

7. Stay until they recover.
The person may feel tired, confused or embarrassed after the seizure. Give them privacy, reassurance and time to recover.

When Should Emergency Help Be Sought?

Seek emergency medical assistance if:

  • The seizure lasts five minutes or longer.
  • Another seizure begins before the person has recovered.
  • The person has difficulty breathing or does not regain awareness as expected.
  • The person is injured during the seizure.
  • The seizure occurs in water.
  • It is the person's first known seizure.

Follow any established seizure-response plan and instructions from the person's healthcare professional, where available.

These measures are based on recognised seizure first-aid guidance. They are not a substitute for professional medical assessment.

The Role of Schools in Building Awareness

Schools play an important role in shaping how children understand differences, respond to emergencies and treat one another. Awareness of epilepsy can contribute to a safer, more supportive and inclusive learning environment.

Teachers and school staff can help by understanding the signs of seizures, learning appropriate first-aid procedures and knowing when to seek emergency assistance. Where a student has a known diagnosis, communication with the family and appropriate healthcare professionals can help establish an individualised response plan.

Equally important is the emotional environment of the classroom. Students should be encouraged to respond with kindness, avoid hurtful comments and understand that a medical condition is never a reason to exclude someone from friendship or participation.

Schools can also strengthen awareness by sharing age-appropriate educational resources, encouraging respectful discussions about health and ensuring that students who need additional support are treated with sensitivity.

A truly inclusive school is one where safety, understanding and belonging go hand in hand.

Replacing Stigma with Empathy

For people living with epilepsy, the challenges may extend beyond the seizures themselves. Misunderstanding, social stigma and fear of judgement can affect confidence and participation in everyday life.

A thoughtful response can make a difference. Offering help without drawing unnecessary attention, respecting privacy, listening without judgement and treating the individual normally after recovery are simple but meaningful ways to demonstrate empathy.

Awareness should not end with learning the facts. It should influence how we behave, how we speak and how we respond when someone needs help.

Where Community Sparks Hope

The message of National Epilepsy Awareness Month 2026 reminds us that support becomes stronger when families, schools, healthcare professionals and communities work together.

Every informed teacher, compassionate classmate, supportive parent and prepared bystander can contribute to a more understanding society. By learning about epilepsy, challenging misconceptions and knowing the basics of seizure first aid, we can help create environments where people feel safe, respected and included.

At St. Francis De Sales School, Guwahati, the broader message is one that extends to every aspect of school life: education is not limited to academic learning. It also involves developing empathy, responsibility, respect for differences and the confidence to help others when it matters.

This November, let us move beyond awareness towards understanding and action. Because when knowledge replaces fear and compassion replaces stigma, every community becomes a place where hope can grow.

Health information note: This article is intended for general awareness and education. It does not replace advice from a qualified healthcare professional.

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